RochelleMay Posted March 3, 2011 Report Share Posted March 3, 2011 Hi all, I am not sure if any one has heard of Pompe Disease but it is a rare and often fatal disease which has no drug funding in New Zealand. My Mother in Law has this disease and so could my partner however it is unlikely unless his father was a carrier of it also. However at this moment as much as I love him I am not too concerned... his mother is the one who needs our help. She has been battling this for most of her life and finally after Doctors were able to diagnos her she came to the realisation that she can't get the medication she needs in New Zealand. But she has the oppourtunity to travel to US for 6 months to participate in a Clinical Trial. So we are doing some fundraising to helps towards this... Any paintings that you purchase of my website or even commision your own piece I will donate the procceds to the 2 New Zealanders who are going to be heading to the US. www.rochellemay.webs.com If you want a painting or know anyone who may like something personalised please let me know and do a good deed at the same time. http://nzpompenetwork.weebly.com/what-i ... sease.html http://nzpompenetwork.weebly.com/allyson.html http://purplelv93.wordpress.com/ Or if you would like to donate personally contact me and I can give you some details. Thanks. . . Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.